My first born, girl child was born in the religious cult, Mormonism. Cornelia de Lange syndrome (CdLS) is a rare genetic neurodevelopmental disorder present from birth, characterized by slow growth, intellectual disability, and distinctive facial features like thin, arched eyebrows that often meet in the middle. Caused by mutations in specific genes.
She lived 2 1/2 years. The husband never held her, abandoned both of us. We were sealed in the temple for time and eternity.
It costs huge, the medical bills. No one knows what to say, it's was not a joyous bundle of joy. My parents were no support. She couldn't suck a bottle, I had to learn how to tube feed. I wish she died, the marriage would crumble, oh God, let it fall. After born, he told everyone he had a dream she would die to look good. He lied about his dream. After she died, I had 6 more kids, everyone was healthy. The arrogant priesthood holder, I just found out he was a spiritual narcissistic abuser who thinks he is god.
As a first time Mother, it tore my spirit to darkness in a lonely hell. Humbled to nothingness. If I had any self-righteous in my body mind spirit it was destroyed. I was a useless Mother In Zion that failed.
Mormonism didn't believe in abortion at that time. I would aborted if I knew. They did not have ultra-sound at that time.
The doctors kept her alive to study us like lab-rats. What is wrong with theses people? She was in ICU for 6 weeks to stay alive. It was never stable. 7 months of her life, she was in the hospital 4 months. CPS decided to place her in a foster hime. I was on over load for fear shame guilt. Zoe Zane
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